Endometriosis Education and Advocacy
Finding an Endometriosis Specialist
Where to Start
Resources for finding leads on a good provider
The best endometriosis care comes from working with a provider who specializes in the disease. The resources below can help you find leads. Finding a doctor through these resources is not a guarantee - you still need to ask questions and vet your provider to make sure they are the right fit for you.
Facebook group for self-guided learning on getting proper care for endometriosis. Join the group, click "Files" and view the most recent list of "Nook Doctors."
A subreddit with a map in the resources of doctors that users have added - users note they got good endo care with these doctors. Join the sub, go to "Community Info," click "Finding a Doctor" then "The Doctor Map."
A website that connects endo providers to patients. Providers on this site pay a fee to be included.
Surgeon directory for patients in Canada.
BSGE Accredited Endometriosis Centres (UK)
A list of NHS centres accredited by the British Society for Gynaecological Endoscopy.
Pelvic Pain Foundation of Australia
Directory of practitioners who list themselves as experienced in pelvic pain and endometriosis.
Vetting Your Doctor
Do your research before your first appointment
Before you meet with any doctor, do as much research as you can. This is your health, your body, and your time. The goal is to find someone who truly specializes in endometriosis and treats it full-time or close to it - not a general OB-GYN who lists "pelvic pain" or "endometriosis" at the bottom of their profile.
If their site talks primarily about "ablation" or focuses primarily on hormonal management, that is a reason to ask more questions and consider a second opinion.
Google
Search the doctor's full name and clinic. Read every result that comes up. Look at patient reviews, published work, and hospital bios. Does their experience center around endometriosis, or do they mainly deliver babies and perform routine gynecology?
YouTube
Check if the doctor has spoken publicly about endometriosis. Have they made educational videos, spoken at events, or appeared on panels about excision surgery? A true expert often shares their knowledge and helps raise awareness beyond their clinic.
Social Media (Reddit, Instagram, Facebook)
Search the doctor's name in endometriosis communities. What are real patients saying? Did they feel listened to and supported? Did their pain improve long-term? Are there consistent concerns about communication, incomplete surgery, or being dismissed?
Nancy's Nook
Use the Facebook group search bar to find the doctor's name. What are Nancy or the moderators saying? Are other patients recommending them? Do they use the word "excision," or do they describe their approach differently?
Key Questions
What to ask yourself before scheduling
- Do they specialize in endometriosis or pelvic pain full-time?
- Do they perform excision or ablation?
- Are their patients talking about long-term improvement or repeat surgeries?
- Do they collaborate with other surgeons for multi-organ cases?
- Do they seem open, educational, and honest about outcomes?
Gather everything you can before scheduling. It will help you walk into your consultation prepared and confident, and possibly save you years of misdirection.