Endometriosis Education & Advocacy
Resources
Wulf Women Resources
Tools from Wulf Women
How to Tell if Your Doctor is an Endometriosis Specialist
A first look at whether endometriosis is at the center of a doctor's practice, or one service among many. This takes 20 minutes and is worth doing before you spend time calling the office
How to Research Your Endometriosis Excision Specialist
A deeper look at a surgeon you are seriously considering. Patient feedback, surgical method, multidisciplinary team, post-surgical care, and how to work out what matters most to you
Questions to Ask During Your Surgery Consultation
The consultation is where you find out how a surgeon actually operates and whether their approach fits what you want. Everything you need to ask to feel confident going into surgery
Preparing for Endometriosis Surgery
A checklist of things to do while you wait for your surgery
Questions to Ask at Your Post-Op Appointment
What to ask once you are on the other side of surgery, including your pathology, operative report, and what comes next
A template you can print and bring to your appointment while working towards your diagnosis or surgery. This will help you to take charge of your appointment and get your doctor all the important information up front so you have time to ask questions and talk about solutions.
OTHER Organizations
Community-vetted resources for patients and advocates
There are so many websites out there with information about endometriosis, these are a few I have found particularly helpful.
Endometriosis Foundation of America
Advocacy, education, and research funding. Lots of patient-friendly resources, videos, and school awareness programs.
Created by a retired nurse who specialized in endometriosis. A wealth of self-guided resources and posts to help you learn more.
Global hub for research updates, treatment info, and a directory of national support groups.
Patient support, advocacy, and educational resources; known for strong community groups and campaigns.
A nonprofit helping women in Canada and beyond navigate the medical system. They also have a great Facebook support group!
National organization providing education, advocacy, and resources tailored to Australian patients.